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La Enfermedad de los Huesos de Cristal - Blog del Dr. Enrique Galindo Martens Blog del Dr. Enrique Galindo Martens
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La Enfermedad de los Huesos de Cristal

05 Feb

huesos de cristal

Les dejo con un video resumen del programa “Mucho que decir” en Intereconomía Televisión.

La semana pasada, este programa tuvo el acierto de dedicar 40 minutos a explicar en que consite la Enfermedad de los Huesos de Cristal ( Osteogénesis Imperfecta , O.I.), una de las tantas enfermedades catalogadas como “raras” e “infrecuentes”.

Junto al enfermo de O.I. y presidente de AMOI ( Asociación de Osteogénesis Imperfecta ) y la Psicologa Dra. Fuster, explicamos en que cosiste la enfermedad, los avances diagnósticos y nuevos tratamientos que existen.

Javier, enfermo de O.I. y profesor de natación, nos demuestra con que entereza asume y maneja su enfermedad. Un ejemplo a seguir!.

 

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  1. Charlotte

    10 marzo, 2012 at 15:33

    Que enfermedad tan rara

     
  2. Enrique Galindo Martens

    15 marzo, 2012 at 2:19

    Si es una enfermedad rara e infrecuente. Es increíble ver que hay gente tan fuerte y con tanta entereza. Aquí el héroe es el paciente.